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Overview |
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This project is designed to increase knowledge and awareness to prevent Fetal Alcohol Syndrome in Russian children through the development of (1) training materials for Russian health professionals, and (2) printed materials targeting women of childbearing age in Russia. Alcohol abuse is a major public health problem in Russia. The rates of FAS and Alcohol Related Neurodevelopmental Disorders (ARND) in Russia are not precisely known. The only available study indicated extremely high rates of FAS in Russian orphanages (Robinson et al., 2001). At this time, there are no programs to prevent FAS in Russia. Currently, a research project is being conducted in Russia to obtain preliminary data critical to developing targeted prevention programs. The project is sponsored by the Fogarty International Center/NIH Research Grant #R21 TW006745-01. The results of Phase I of the study, focus groups with health professionals (pediatricians, obstetricians-gynecologists, and substance abuse treatment providers), pregnant women and their partners, non-pregnant women, and women with alcohol dependency, indicated limited knowledge about FAS, misconceptions about alcohol use during pregnancy, and a lack of materials and print resources related to this topic. Based on these initial findings, this project proposes to develop and evaluate informational materials, such as posters and brochures for women, and training materials for healthcare professionals to reduce drinking during pregnancy in Russia. The FAS Curriculum Framework, the Instructional Resource Handbook, and Fetal Alcohol Syndrome: Guidelines for Referral and Diagnosis will guide the development of the training materials for Russian professionals, and CDC and NIAAA print materials, such as posters and brochures, will be used to develop culturally appropriate materials in the Russian language. The training materials for professionals and printed materials for women will be tested in randomized trials in a pre-post test design to determine the effectiveness of the training and print materials in changing knowledge about FAS, skills, and attitudes toward drinking during pregnancy. The project will be conducted in collaboration with St. Petersburg State University and the research will be conducted in sites established through the current NIH project, continuing medical education programs, and women's clinics in St. Petersburg and the Nizhniy Novgorod region. |
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*CDC/AUCD I-RTOI 2005-999-01 |
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Summary of information on FAS/FASD diagnosis and the Lip-Philtrum Guide (Susan Astley, Ph.D., FAS Diagnostic & Prevention Network, University of Washington, Seattle, WA, USA) were translated into Russian. The translation was completed as a part of the research project Development of Education Materials for Prevention of FAS in Russia, funded by the Centers for Disease Control and Prevention (CDC), National Center on Birth Defects and Developmental Disabilities (NCBDDD) through a cooperative agreement with the Association of University Centers on Disabilities (AUCD Grant No. AUCD RTOI 2005-999-01). The Lip-Philtrum Guide is available in English and Russian translation at the Fatal Alcohol Syndrome Diagnostic & Prevention Network website - http://depts.washington.edu/fasdpn/index.htm .
You can place your order on-line. |
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Резюме, обобщающее диагностические критерии ФАС/ФАСН и Шкала губ - губного желобка, подготовленные Др.Сюзан Эстли, были переведены на русский язык Др. Татьяной Балашовой и Др. Александром Пальчик. Перевод был осуществлен в рамках исследовательского проекта разработки учебных материалов по профилактике ФАС
в России, который финансируется национальным центром по врожденным
дефектам и инвалидностям и центром контроля и предотвращения заболеваний
через договор с Ассоциацией университетских центров по проблемам
ограниченных возможностей (грант No RTOI 2005-999-01).
Шкала губ - губного желобка на английском и русском языках приводена на
вебсайте http://depts.washington.edu/fasdpn/index.htm. Шкалу на русском
или английском языке можно заказать по указанному выше интернет адресу. |
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Principal Investigators |
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Co-Investigators |
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Russian Team |
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Larisa Tsvetkova, PhD
Galina Isurina, PhD
Alexander Palchik, MD, PhD
Vladimir Shapkaitz, MD, PhD
Oleg Erishev, MD, PhD
Elena Volkova, PhD
Maxim Gusev
Olga Gluzdova, PhD
Maria Potapova, MS
Alla Loffe, MS
Elena Rumiantseva
Alexandra Regentova
Mikhail Zotov, MS |
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Funding Source |
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Dates |
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Contact Information |
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Child Study Center
University of Oklahoma Health Sciences Center
1100 N.E. 13th Street Oklahoma City, OK 73117-1039
Phone: (405) 271-5700 | Fax: (405) 271-8835 | Email: Department Contact |
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